‘Having a support force is the most important thing in your life’ - Siouxlander raises awareness for Turner Syndrome

Published: Feb. 2, 2022 at 5:14 PM CST
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SIOUX CITY (KTIV) - It is Turner Syndrome Awareness month!

In 2015, a resolution was signed in Iowa recognizing February as Turner Syndrome Awareness month.

Turner Syndrome is a rare genetic disorder that only affects females, about 1 in 2,500. It happens when a female is born with only one X chromosome and can cause symptoms such as short stature, delayed puberty, infertility, heart defects, and learning disabilities.

KTIV spoke with Nicole Cleveland from Sergeant Bluff who was diagnosed with Turner Syndrome when she was born.

Cleveland was told she wouldn’t be able to walk normally and would need walking braces for her entire life, but she has defied all odds. She went on to be the youngest woman ever elected to the city council in Sergeant Bluff at 25 years old.

Cleveland is now passionate about being an advocate for Turner Syndrome Awareness and hopes her story can be a light for others. Her biggest advice to anyone dealing with a disorder is to find a support system.

“They pushed me to say ‘No, don’t give up, do it, you can do it.’ And that helps tremendously. And I think that is the biggest thing for anybody who is going through a disorder, whether it’s having Down syndrome, or autism or even having cancer. Having a support force is the most important thing in your life,” said Cleveland.

Cleveland encourages people to look up resources online such as the Turner Syndrome Society of the United States and the Turner Syndrome Foundation.

She is also in the process of publishing a book that will be available this Spring. It’s called The Butterfly Chronicles and shares Nicole’s own personal story of growing up with Turner Syndrome and how she overcame her obstacles.

You can find this book on Amazon, Barnes and Noble, or anywhere books are sold this spring, or visit Nicole’s website.

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